Gifts from our baby Grace, diagnosed with occipital encephalocele at 20 weeks.
"For you created my inmost being; you knit me together in my mother's womb. I praise you because I am fearfully and wonderfully made; your works are wonderful, I know that full well. My frame was not hidden from you when I was made in the secret place, when I was woven together in the depths of the earth. Your eyes saw my unformed body; all the days ordained for me were written in your book before one of them came to be."
Friday, March 11, 2011
We are loving every minute holding our precious Grace like a "normal" baby now! It is amazing! She is doing great! Yesterday, we spent about six hours holding her. Her incision looks great, and her doctors are very happy with how she is doing. We got there and found a sweet pink bow in her hair, thanks to her nurse! They extubated her early yesterday morning, and her vital signs and labs have been great. They discontinued all her IVs except for one, which was giving her IV fluids to keep her hydrated. We got to feed her for the first time after surgery around 2:00 pm yesterday. She did great! She took two ounces! Her Nanny and Pawpaw got to visit with her some yesterday too. We are so happy with how Grace is doing! We may get to bring her home as early as next Wednesday! She is such a miracle, and all praise to our Father!
I thought you would like to see some pictures of our miracle baby!
I am a wife, momma, and pediatric nurse. My daughter Grace was born March 4, 2011, and she is an awesome little girl! She has special needs (see my link "Grace's Story"). Our second baby, Micah, is due March 31, 2014. My prayer for our family is that God would use us to draw others nearer to Him. This blog is dedicated to my journey with motherhood.