Psalm 139:13-16

"For you created my inmost being; you knit me together in my mother's womb. I praise you because I am fearfully and wonderfully made; your works are wonderful, I know that full well. My frame was not hidden from you when I was made in the secret place, when I was woven together in the depths of the earth. Your eyes saw my unformed body; all the days ordained for me were written in your book before one of them came to be."

Wednesday, March 23, 2011

Two Weeks Post Op





 Our sweet girl is 2 weeks, 5 days old, and is 2 weeks post op.  Can you tell this baby girl had neurosurgery 2 weeks ago??!  She is our greatest blessing, and we are so thankful for her!

These days, she eats 3 ounces every 3 hours.  She sleeps pretty good, and is most awake and alert at night.  She sometimes requires a diaper change both before and after she eats!  She continues to hate having her diaper changed.  She is too big for newborn size diapers, but she is too small for size 1s.  So, we have to change everything a lot!  She also spits up/vomits a lot.  Her incision continues to heal well.  We continue to follow our doctor's infection control orders...we stay home, and can have very few well adult visitors. 

We have appointments with our palliative care doctor, Dr. B, and our pediatrician, Dr M this week.  We have an appointment with our neurosurgeon, Dr. P next week, and we have an appointment with the pediatric audiology clinic the next week. 

"From the fullness of grace we have received one blessing after another..."

15 comments:

  1. Hey Karen! I needed to read your sweet post today. I have had a case of the doubts/fears and just reading about Grace makes me remember in God's provisions, HIS plan,and his able to move mountains! The verse you shared is the verse we used on Elizabeth's birth announcement. Thank you for the reminders of God's grace and sharing your Grace with us! I am so thrilled that you are a mommy!!
    Love,
    Kelsey

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  2. She is beautiful and such a gift from God. I've followed your blog since the beginning and we too hold with us one of God's biggest miracles. The doctors were unsure what quality of life our little one would have when he was born since he was missing part of his brain, his corpus callosum and dysplasia throughout the left side of his brain. Almost 20 months after we said yes to God's call to bring Gabriel into our lives, he's thriving in ways no one but God could expect. And only God knows the difference your Grace is going to make in this world.

    We include your Grace in our prayers daily. God bless!

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  3. I have been following your story and praying for you. All I can say is GOD it so good. She is gorgeous and I am sure you are loving every minute with her.

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  4. I've been following your blog for a couple months now and praying for Grace. She is beyond precious! Her picture made me cry today. God is so good and faithful when we trust Him. I am just so happy for you, and for Grace too who has a wonderful mommy and daddy to love her :) I'll continue to pray for God's perfect plan to be fulfilled in Grace. What a perfect name for her!

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  5. So happy that Grace is doing great!!! She's a beautiful baby!!!

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  6. She is so beautiful! I'm so happy she is doing so well, what a wonderful blessing=)

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  7. Karen and Chad -
    I have been following your blog (my husband, Larry, and I are friends with Lyndsey Hester).. and am thankful every day for Baby Grace - and the miracle that she is.

    Thank you for keeping us updated!
    Fran Gatewood

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  8. Bethany (Jones) Attaway (from MC)March 24, 2011 at 12:07 AM

    Karen-
    I am so grateful for what God is doing in your lives and encouraged by the faith that He has given you! I pray that He will continue to strenghten your family in these newborn days! Grace is beautiful!
    Bethany (Jones) Attaway

    Psalm 144:12
    May our sons in their youth be like plants full grown, our daughters like corner pillars cut for the structure of a palace.

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  9. what a sweetie!! LOVE the bow!!

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  10. What a beautiful testimony of God's mercies and grace to Grace and to her parents who trust His good providence.

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  11. Hello,

    I have been following your blog for a couple of months. We have an 11 month old daughter named Violet who has ACC and an interhemispheric cyst in the frontal lobe of her brain. We found this out when I was 27 weeks pregnant. I was given the option to terminate. Like you and your family, we made arrangements with palliative care before she was born. Violet was born into Hospice care and then discharged at one month old. Like your daughter, Grace, our daughter, Violet is a gift from God. I welcome you to check out our blog in your "spare" time. : )

    I am so happy for your family.

    Warmly,
    Kelly Horsford

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  12. Oh how beautiful she is.. I love the bow!!!! I am still keeping her in my prayers. I love seeing your posts. It's filled with such happiness.. Who knew that it would be like this?? What an amazing miracle your sweet baby Grace is..
    Nancy

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  13. I do enjoy seeing you and your wonderful daughter. Give her some hugs from her Colorado friend-I'd be happy to be called her western nanny. ♥♫

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  14. I hope you don't mind but I shared this story with my facebook friends. I wanted so much to share this miracle..
    Nancy

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  15. Your little miracle is beautiful! I continue to keep you in my prayers and check your blog. I'm thrilled with how well Grace is doing. She is precious. Thank you Lord!

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