Lydia had a great night with her mom and dad! She is not changing by leaps and bounds, but she made a couple of steps in a very positive direction last night. The doctors remain positive about how she is doing! We want to thank you for the prayers. Lori and Jason say they feel comforted by them and are seeing them working!
This is my prayer in the battle, when triumph is still on its way; I am a CONQUEROR and co-heir with Christ! So firm on His promise I'll stand!
I will bring praise! I WILL BRING PRAISE! No weapon formed against me shall remain. I will rejoice! I will declare God is my VICTORY and HE IS HERE!
Friday, May 25, 2012
Thursday, May 24, 2012
Lydia PICU Day 2
Lydia has been having seizures. They are
keeping her medicated to try to stop them, but the meds make her very
sedated. She is breathing on her own, and the rest of her body is
strong. The seizure activity was better through the night, and she is
holding steady! Dr said he is impressed with the strenght of her body
under all these meds. She is doing well considering all she has going.
Please pray specifically for the seizures to STOP COMPLETELY so that she can be tapered off the medicines that have her so sleepy. We are praying for and believe we will see her recover fully, and her neurologist is very optimistic that she will, it's just a matter of how long that will take.
Jason and Lori can be with her, but other visitors are restricted. Please just pray for her, for Jaycie, and for Lori and Jason as they try to balance time between their two precious daughters. Thank you so much for your prayers!
Lori got to hold her today!
Please pray specifically for the seizures to STOP COMPLETELY so that she can be tapered off the medicines that have her so sleepy. We are praying for and believe we will see her recover fully, and her neurologist is very optimistic that she will, it's just a matter of how long that will take.
Jason and Lori can be with her, but other visitors are restricted. Please just pray for her, for Jaycie, and for Lori and Jason as they try to balance time between their two precious daughters. Thank you so much for your prayers!
Lori got to hold her today!
Wednesday, May 23, 2012
Lydia Update
Lydia is stable. She is still in ICU. Lori's words were "she is stable, but worrisome". Results from the CT scan today were no different/worse than expected. The doctor remains hopeful.
These are also Lori's words: "we serve a mighty God, so we are hopeful too! Just please, please pray for the Lord to heal our baby girl! And pray for big sis Jaycie as we talk with her this afternoon. 'Our God is greater! Our God is stronger! God, YOU ARE HIGHER than any other!' Claiming victory in Christ."
God is still in control. He has his hand on Lydia and our family. We trust and believe in His perfection.
"The Lord is close to the brokenhearted and saves those who are crushed in spirit." Psalm 34:18
These are also Lori's words: "we serve a mighty God, so we are hopeful too! Just please, please pray for the Lord to heal our baby girl! And pray for big sis Jaycie as we talk with her this afternoon. 'Our God is greater! Our God is stronger! God, YOU ARE HIGHER than any other!' Claiming victory in Christ."
God is still in control. He has his hand on Lydia and our family. We trust and believe in His perfection.
"The Lord is close to the brokenhearted and saves those who are crushed in spirit." Psalm 34:18
Lydia
Saturday, we welcomed our precious 7 pound niece Lydia into this world!
Please pray for Lydia. She was admitted to the hospital last night, and is now in ICU. She had an abnormal CT scan, but the doctor is hopeful, and we serve a mighty God! Please pray for healing for her little body, for a peace that passes all understanding for her parents, Lori and Jason (Lori is Chad's sister), and for their other daughter Jaycie who is 6. Thank you, prayer friends!
Here is a picture of the precious baby girl you are praying for and her big sister! Aren't they beautiful?!
Please pray for Lydia. She was admitted to the hospital last night, and is now in ICU. She had an abnormal CT scan, but the doctor is hopeful, and we serve a mighty God! Please pray for healing for her little body, for a peace that passes all understanding for her parents, Lori and Jason (Lori is Chad's sister), and for their other daughter Jaycie who is 6. Thank you, prayer friends!
Here is a picture of the precious baby girl you are praying for and her big sister! Aren't they beautiful?!
Sunday, May 13, 2012
Wednesday, May 9, 2012
Third Opinion
Last Wednesday, Grace had an ophthalmology appointment with a new doctor. This was our third opinion.
Just a brief recap on our other two opinions. The first eye doctor we have been to was less than informative and gave little hope of improvement. He basically told us nothing. The second eye doctor we saw is affiliated with our state's school for the blind. He was very hopeful and encouraged us to try to get involved with our state's comprehensive home-based intervention program (CHIP), which is basically like vision therapy. After a LONG wait, we were denied admission into CHIP based on that same doctor's recommendations (yes, that's right). We had really given up on finding an eye doctor that we liked, until our pediatrician recommended seeing our new doctor, Dr. M.
I am SO glad we listened to her and saw Dr. M! He was very informative, and spent the perfect amount of time with us. He talked with us intelligently and gave us a lot of hope for Grace's continued improvement with her vision. He said there is nothing wrong with her eyes, and that she is near sighted (but no different than other children her age). All in all, we were very pleased with our appointment!
Ok so also, I have to give a shout out to Grace's Mammaw Rita and Aunt Susie! Mammaw keeps Grace when I work, and Aunt Susie is also home on the Fridays I work. Grace loves them so much! :) Anyway, they started a business Kuddle Designs! Kuddle Kidz and Kuddle Kritterz are handmade rag dolls/animals. Grace has a Kuddle Kritter that she LOVES! (I'll have to post pictures!)
For now, you'll have to settle with pictures from my cell phone! :)
Just a brief recap on our other two opinions. The first eye doctor we have been to was less than informative and gave little hope of improvement. He basically told us nothing. The second eye doctor we saw is affiliated with our state's school for the blind. He was very hopeful and encouraged us to try to get involved with our state's comprehensive home-based intervention program (CHIP), which is basically like vision therapy. After a LONG wait, we were denied admission into CHIP based on that same doctor's recommendations (yes, that's right). We had really given up on finding an eye doctor that we liked, until our pediatrician recommended seeing our new doctor, Dr. M.
I am SO glad we listened to her and saw Dr. M! He was very informative, and spent the perfect amount of time with us. He talked with us intelligently and gave us a lot of hope for Grace's continued improvement with her vision. He said there is nothing wrong with her eyes, and that she is near sighted (but no different than other children her age). All in all, we were very pleased with our appointment!
Ok so also, I have to give a shout out to Grace's Mammaw Rita and Aunt Susie! Mammaw keeps Grace when I work, and Aunt Susie is also home on the Fridays I work. Grace loves them so much! :) Anyway, they started a business Kuddle Designs! Kuddle Kidz and Kuddle Kritterz are handmade rag dolls/animals. Grace has a Kuddle Kritter that she LOVES! (I'll have to post pictures!)
For now, you'll have to settle with pictures from my cell phone! :)
Thursday, April 12, 2012
Therapy Progress
Happy Thursday. It's the day before I begin my long weekend of working, so it's not so happy for me! :( I think I'll just hold a baby all day!
I just wanted to update on Grace's progress with therapy.
We are seeing our speech therapist, ML on an as needed basis. Grace is doing really well with many different foods and textures. She does great with both smooth and lumpy foods. I often use a food mill to make food for her. I also mash or cut up different foods. She is still eating baby food mixed with crackers, and she is handling that texture really well. She still gags on slippery foods, like peaches. We are currently working on getting her to transition from the bottle. I thought it wasn't going so well, but according to ML, Grace is doing good with transitioning. Haha...just goes to show you that I still really don't know a whole lot about ST. Who knew eating was so complicated?! Grace will take thin liquids, such as juice or milk, from a spoon, as well as from the edge of a cup. She still refuses a sippy cup. It's hard to really understand sometimes when I may be pushing her too hard versus just behavior. She sometimes fusses when I am working with her, but we do have to work on it, so I push past the tears without (hopefully) pushing too hard! We are also desperately trying to work on self-feeding! This is a combination of ST and OT. We are finally making progress with this!! For the first time ever, Grace let me help her feed herself a puff last night! I videod it today (see below). She used to totally refuse for me to bring her hand to her mouth during feeding times. I think we are making progress!!
Our physical therapist, KC is helping Grace learn how to crawl! I posted a video of this a few posts back. Grace continues to make progress with this. Our main task currently is finding something to motivate Grace with to crawl. KC and I are stumped! She has definitely learned what to do to crawl, she just is very content to sit where she is. :( Any suggestions are appreciated!
Our occupational therapist, KP is helping Grace learn how to hold onto objects for longer, as well as use her hands together. Because of her ACC (agenesis of the corpus callosum), Grace doesn't really use her hands together. But she is learning! She is using her hands together to grab balloons, as well as one of her favorite toys, a red bowl. Sounds boring, right?! Who knew I could've just saved all the money I've spent on buying her fancy toys?! Balloons and a red bowl. Haha! Here are some pictures of Grace doing really well for OT at home.
I am very pleased with my sweet girl! She is such a hard worker and has so much strength and determination! Anytime I'm feeling tired and not really wanting to do her therapies, I just think about her strength, and I am able to continue working hard for her. I won't fool you into thinking this is easy...it is NOT! We go to therapy every Wednesday and Thursday (did I mention we don't live close to our therapy place??), and we do daily therapy at home. I try to make everything teachable but fun for Grace. I've said this from the beginning, but she is my feisty fighter! Go, Grace!! :)
And here's one last picture of my baby girl! Isn't she just beautiful?!
I just wanted to update on Grace's progress with therapy.
We are seeing our speech therapist, ML on an as needed basis. Grace is doing really well with many different foods and textures. She does great with both smooth and lumpy foods. I often use a food mill to make food for her. I also mash or cut up different foods. She is still eating baby food mixed with crackers, and she is handling that texture really well. She still gags on slippery foods, like peaches. We are currently working on getting her to transition from the bottle. I thought it wasn't going so well, but according to ML, Grace is doing good with transitioning. Haha...just goes to show you that I still really don't know a whole lot about ST. Who knew eating was so complicated?! Grace will take thin liquids, such as juice or milk, from a spoon, as well as from the edge of a cup. She still refuses a sippy cup. It's hard to really understand sometimes when I may be pushing her too hard versus just behavior. She sometimes fusses when I am working with her, but we do have to work on it, so I push past the tears without (hopefully) pushing too hard! We are also desperately trying to work on self-feeding! This is a combination of ST and OT. We are finally making progress with this!! For the first time ever, Grace let me help her feed herself a puff last night! I videod it today (see below). She used to totally refuse for me to bring her hand to her mouth during feeding times. I think we are making progress!!
Our physical therapist, KC is helping Grace learn how to crawl! I posted a video of this a few posts back. Grace continues to make progress with this. Our main task currently is finding something to motivate Grace with to crawl. KC and I are stumped! She has definitely learned what to do to crawl, she just is very content to sit where she is. :( Any suggestions are appreciated!
Our occupational therapist, KP is helping Grace learn how to hold onto objects for longer, as well as use her hands together. Because of her ACC (agenesis of the corpus callosum), Grace doesn't really use her hands together. But she is learning! She is using her hands together to grab balloons, as well as one of her favorite toys, a red bowl. Sounds boring, right?! Who knew I could've just saved all the money I've spent on buying her fancy toys?! Balloons and a red bowl. Haha! Here are some pictures of Grace doing really well for OT at home.
Both hands!
KP says this is a higher level skill
Rrreeeeaaaach!!!
The infamous red bowl!
I am very pleased with my sweet girl! She is such a hard worker and has so much strength and determination! Anytime I'm feeling tired and not really wanting to do her therapies, I just think about her strength, and I am able to continue working hard for her. I won't fool you into thinking this is easy...it is NOT! We go to therapy every Wednesday and Thursday (did I mention we don't live close to our therapy place??), and we do daily therapy at home. I try to make everything teachable but fun for Grace. I've said this from the beginning, but she is my feisty fighter! Go, Grace!! :)
And here's one last picture of my baby girl! Isn't she just beautiful?!
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