Psalm 139:13-16

"For you created my inmost being; you knit me together in my mother's womb. I praise you because I am fearfully and wonderfully made; your works are wonderful, I know that full well. My frame was not hidden from you when I was made in the secret place, when I was woven together in the depths of the earth. Your eyes saw my unformed body; all the days ordained for me were written in your book before one of them came to be."

Tuesday, March 8, 2011

Update

We received Grace's MRI results tonight.  Amazingly, and because of the God we serve, Grace's prognosis is much better than expected!  The encephalocele (I hope I don't ever have to see that word again!!!) contains mostly CSF and only a very small portion of brain tissue (part of her cerebellum).  The rest of her brain looked mostly normal...remember, she has been diagnosed with agenesis of the corpus callosum (this cannot be corrected).  Grace will have surgery to remove the encephalocele tomorrow at 9:00 am.  SO, the neurosurgeons are hopeful and optimistic that Grace will have quality of life and her functioning could be up to normal.  She may still have developmental delays, but we trust that we are able of taking care of her!

Prayer requests:
-pray for Grace tonight, as she will have to have an IV placed and be on IV fluids and antibiotics, as she can have nothing by mouth after midnight
-pray for Grace's surgeons tomorrow as they operate
-pray that there will be no complications
-pray for peace for us as we wait on Grace's surgery to be finished
-pray that Grace will get to come home as soon as possible

We love her forever.  Chad and I could have never imagined the love we would have for her.  We are spending our last night in the hospital with her as a family of three!

We are requesting no visitors tomorrow as we wait.  We will have our immediate families and a few close friends only with us tomorrow.  We will update as soon as possible.

Thank you for your prayers!  We are amazed at our miracle baby!

Our precious miracle :)

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18 comments:

  1. Bruce A. UlrichMarch 8, 2011 at 8:50 PM

    So glad to hear the optimism. We are definitely praying for you, Chad & baby Grace.

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  2. NotsopcMarch 8, 2011 at 8:55 PM

    WOW that was a good update. Will be thinking of you tomorrow.. GOD's sure been busy with Grace.. Praying that all goes well tomorrow..
    Nancy

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  3. millicentMarch 8, 2011 at 8:55 PM

    she is so beautiful!! Praise God for the good report!!!
    Praying!!

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  4. AnonymousMarch 8, 2011 at 9:01 PM

    Great! God is good. Praying for you and the surgeons. Dr. Jesus is the captain of the team!

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  5. JonathanMarch 8, 2011 at 9:04 PM

    Two words: "Wooo Hooo!"

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  6. KathyMarch 8, 2011 at 9:11 PM

    What great news.She is beautiful. Sending prayers your way from TX. will be watching for updates.

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  7. Katie S.March 8, 2011 at 9:11 PM

    This is amazing news! God bless sweet baby Grace! :-)

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  8. SusieMarch 8, 2011 at 9:31 PM

    Praising God for this wonderful report! Praying for yall still, especially tomorrow with the surgery.

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  9. Beverly KeyesMarch 8, 2011 at 9:34 PM

    Amazing Grace is so beautiful! I hope you know how loved she is by so many people. Much love and many prayers are being sent to all of you. Love y'all.

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  10. UnknownMarch 8, 2011 at 9:41 PM

    Wow! So glad that we can all rejoice in a good report. God is good and faithful! Will be praying for y'all and the medical team and sweet Grace.

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  11. JulieMarch 8, 2011 at 10:55 PM

    We are praying!

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  12. crystalMarch 8, 2011 at 11:58 PM

    I am giving God the Glory for helping Grace and I am praying for you guys. What a Mighty God we serve!!! I am praying for you to have peace tomorrow, praying for Grace to have strength, and praying that God will be in the room with the doctors. Thanks for updating and we will continue praying!!!

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  13. JudyMarch 9, 2011 at 4:37 AM

    Praise you Jesus!!! Oh the tears streaming down my face....this is what I've been praying for and believing for you guys!!! I'm rejoicing with you and I will most definitely be praying at 9am tomorrow!! May Jesus continue to work in Grace's life in a mighty, mighty way!!!!

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  14. AnonymousMarch 9, 2011 at 5:22 AM

    YEAH!!!

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  15. The TraynumsMarch 9, 2011 at 6:53 AM

    Wow! What a sweet Lord we serve!!! What a miracle!

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  16. AmyDMarch 9, 2011 at 7:57 AM

    That's AWESOME news!!!! Praying for all of you as she goes through her surgery. Grace and Gianna's journeys have been so similar thus far. God has truly blessed these little girls. Take care of yourself! Best, Amy

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  17. Texas GirlMarch 9, 2011 at 10:06 AM

    What a miracle!! Praise be to God alone! Grace is absolutely beautiful!!! Praying for the surgeons hands as they do God's work in the surgery. Praying for your hearts to have peace during this process. And praying for sweet Grace to continue fighting!

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  18. LeslieMarch 9, 2011 at 10:16 AM

    Praying special prayers for all of you today. Thank you for the continued updates.

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