Psalm 139:13-16

"For you created my inmost being; you knit me together in my mother's womb. I praise you because I am fearfully and wonderfully made; your works are wonderful, I know that full well. My frame was not hidden from you when I was made in the secret place, when I was woven together in the depths of the earth. Your eyes saw my unformed body; all the days ordained for me were written in your book before one of them came to be."

Thursday, November 4, 2010

Our life...our prayer

I just wanted to post an update on Grace and her prognosis/plan. We are always learning more about what Grace's diagnosis means, and this is what we know as of today.

We met with two pediatric surgeons, as well as our genetics counselor and nurse. They confirmed with our fetal MRI results that Grace's encephalocele contains part of her cerebellum, but that there are no other known anomalies. Because of this, the probability of me delivering Grace full term and alive is good. Surgery to repair Grace's encephalocele will probably be soon after delivery.

One of our main questions today was what will Grace's quality of life be. After researching occipital encephalocele, I have learned that Grace could have severe neurological defects. Dr. L confirmed this. He said basically that Grace probably would not have much/any quality of life and probably would not know the world around her. Even though Chad and I were not surprised because of this news, it was still not easy to listen to it confirmed.

Our main prayer for Grace is that God will fulfill His purpose for her life...however long or short her precious life will be. That is our main hope. We will trust God to fulfill His purpose. Secondly, we are also praying that Grace would not suffer in her life. Because of this, the palliative team will be involved with her care. We are praying for wisdom with decisions for our baby girl.

I pray daily for a miracle (she is already a miracle!) and that Grace knows how much her Momma and Daddy love her. We love her so much. We choose to celebrate Grace's life.


  1. {Sigh} its so hard to see this struggle. I will be praying. That you will have comfort from HIS love. Philipians 2

  2. I wish I was there so I could hug you. I love you very much and think you and your family daily!
    PS you look so cute with baby belly ;)