Subscribe to:
Post Comments (Atom)
Psalm 139:13-16
Lilypie First Birthday tickers
Our family
Baby Grace
Chad and me
26 weeks pregnant
About Me
- Karen
- I am Momma of Grace Elizabeth (I'm a pediatric nurse on the side). After six years of marriage, Chad and I learned we were pregnant with our first baby in July 2010, and we learned it's a girl on October 21. Our baby girl was diagnosed with occipital encephalocele (which contained mostly CSF and approximately 10% of her cerebellum) with Chiari type III malformation October 22, when I was 20 weeks pregnant. She also was later diagnosed with agenesis of the corpus callosum and microcephaly. Although the prognosis was poor (we were given the option to terminate more than once), we decided to carry her and allow God to use Grace to draw others nearer to Him, either through her life or through her death. Grace was born March 4, 2011, at 39 weeks, and was 7 pounds, 1 ounce, and 18.5 inches long. She is our miracle baby! God has blessed Chad and me with being her parents. Our prayer for Grace is that God will use her life to draw others nearer to Him. This blog is dedicated to Grace and my journey with motherhood.
My Email Address
Please pray...
- That Grace's vision will continue to improve
- That Grace will continue making progress with physical, occupational, and speech therapy
- That Grace will remain seizure free (she is at risk for seizures)
- That Grace's VP shunt will continue working well...no malfunctions and no infections!
- That a spot would open for Grace to get into The Little Lighthouse soon
- Grace's team: doctors, nurse practitioners, nurses, and others
- Our families and friends, who are living this life with us
- Grace's healing
Appointments
- 9/13/12 - Palliative doctor
- 8/17/12 - Neurosurgery
- 5/17/12 - Audiology
- 5/2/12 - Opthamology (3rd opinion)
Labels
Link List
- Andrea Reed Photography
- Angels Around the World
- String of Pearls
- Now I Lay Me Down to Sleep
- Encephaloceles information page
- Chiari malformation information page
- Agenesis of the corpus callosum information page
- Hydrocephalus information page
- VP Shunt
- Microcephaly information page
- The Little Lighthouse
My Favorite Books
- Hearing Jesus Speak into Your Sorrow - Nancy Guthrie
- The One Year Book of Hope - Nancy Guthrie
- I Will Carry You - Angie Smith
- Trusting God Even When Life Hurts - Jerry Bridges
- The Red Sea Rules - Robert J. Morgan
- Choosing to See - Mary Beth Chapman
Followers
Your so sweet. Thank you all so much for all of your prayers!
ReplyDelete