"I will say of the Lord, He is my refuge and my fortress, my God, in whom I trust."
Hey! I just wanted to post an update on what's been going on with Miss Grace. We had an appointment today. She was so, so sweet on ultrasound today! Of course she never lets the doctors have it easy (I love it!). Her head was basically on my right hip bone! She also had her hands covering her face the entire time!! We got to see her beautiful lips and nose, but not her eyes! She is a funny and I think stubborn little girl! We love her so much! There wasn't really any new news, which is what I prayed for. She does now meet criteria for microcephaly (having a small head), which the doctors said is expected. I did read on the report that her encephalocele is 5 cm in greatest diameter (originally, it was 3 cm). The fellow also measured the area where the two bones in her head did not form like they were supposed to, which caused her encephalocele. It measured 1 cm. Dang that 1 cm! It's hard to believe that such a small area caused so many problems. We also met again with our palliative team nurse practitioner to continue to talk about goals and plans for our sweet girl. We talked about doing everything versus no heroic measures. These are certainly decisions that neither we nor any parent should have to even think about. But that is our reality now. We are praying for wisdom with decisions and are basing our decisions on Grace's quality of life. Please pray with us for the wisdom that we need. It is indescribable the amount of responsibility we feel for this little life. Her life is truly amazing, and a miracle from God!
I also had my glucose tolerance test today. After 4 rounds of urine and blood samples, I was finally finished! I felt like I got out of jail when I was done! I met my friend Anna for lunch and got something "really good fattening to eat" as my mother-in-law said! I'm not sure if anything has ever tasted so good! Thank you, Roosters. I will know results tomorrow. I am praying that I do not have gestational diabetes.
Also, we met our new OB, Dr. B, last week. We really liked her! We measured 25 weeks (2 weeks behind), and Grace's heart rate was 156-158. We are so thankful for an amazing team of medical professionals who are here with us.
Finally, we are trying our best to celebrate our baby Grace's life. If you have any comments to help with this, please let me know!