Gifts from our baby Grace, diagnosed with occipital encephalocele at 20 weeks.
Psalm 139:13-16
"For you created my inmost being; you knit me together in my mother's womb. I praise you because I am fearfully and wonderfully made; your works are wonderful, I know that full well. My frame was not hidden from you when I was made in the secret place, when I was woven together in the depths of the earth. Your eyes saw my unformed body; all the days ordained for me were written in your book before one of them came to be."
The baby girl is 7 months old. Times flies, and we are certainly having fun! There is not a whole lot of new things going on in our house, except for lots of eating and growing, as well as continued progress with meeting developmental milestones. We are now in size 4 diapers, and some 9, but mostly 12 month clothes. The newest things are that she is trying to roll from her tummy to her back, and she is also trying to sit up! She loves all things vegetable. And, as you can see by the videos (see the one below), she is really finding her laughing voice!
We simply couldn't love her more!
Walker and Grace on a date. I hope this isn't predictive.
Oh my goodness...my baby girl is 6 months old!!! 6 months...that's just crazy!
Here are her stats from our appointment with Dr. M, her pediatrician:
-length: 25.5 in (50%tile)
-weight: 18 lb, 2 oz (>75%tile)
-head circumference: 39.25 cm (<5%tile)
No, you can't put Grace on your table at Thanksgiving. :) And although her HC is <5%tile, it is still growing, just on it's own curve right under the "normal" curve (around the 2%tile).
Some exciting new developments...Grace is rolling! She can roll from her back to her sides and then to her tummy! She is also "talking" more and more. She sucks her thumb (left hand) often. She is continuing to make slow improvements with therapy. Also, most recently she has been consistently looking at me and smiling. You do not know how much that blesses my heart! Before now, she has mostly just smiled at hearing my voice. So it seems her vision is improving!! Thank you, God!
She is in size 3 diapers, although I recently bought size 4s because I think we will be moving up soon. She is wearing mostly size 9-12 month clothes. She is eating about 3-4 bottles a day and 2 "meals" of stage 2 baby food. She likes apples, pears, prunes, carrots, squash, and sweet potatoes. It seems she likes vegetables better than fruits (squash is by far her favorite). She must take after her daddy in that area.
We saw Dr. B and our palliative team yesterday just for follow up. I love our palliative team! They give us so much support and I really like that they look at Grace with a different set of eyes. There was really nothing new regarding the appointment, but we did get referrals for another vision evaluation (with possibly vision therapy in the future), and for another therapy group.
We also saw Dr. P (Grace's neurosurgeon) today for follow up from her shunt surgery. She had a CT first and the appointment second. Dr. P said her CT scan looked "perfect" and that she is doing great!!! We will follow up again in 6 months, when Grace will be almost 1!
Finally, I love this song! I just listened to it for the first time today. Grace, you were meant to be!
So how can you continue to pray for our sweet girl? Pray that her shunt would continue to remain infection free and that it will continue working. Pray that she would continue to make progress with her therapy. Pray that she would continue to meet her developmental milestones. Pray that her vision continues to improve.
Thank you for loving our sweet girl and for joining with us in prayer for her!
We are on day 2 of TRYING rice cereal (per spoon...she already LOVES it in her bottle)...I say "trying" because I'm not really sure how well it's going! ha What I am sure about is that I have a little baby growing into a big girl! She'll be five months old very soon. I wish I could just say STOP and pause these moments...it's all happening too fast! I am LOVING every second of being momma to this precious girl! I thank God for blessing my life with her!
We had Grace's four month pediatrician visit today. She got three vaccines (two shots), and she did great! Stats: Weight 15.1 lb (50-75%tile), length 24.something in (50%tile), and head circumference 38 cm (<5%tile). I am so proud of my growing girl!
I finally got a video of her talking saved, so here it is!
I am a wife, momma, and pediatric nurse. My daughter Grace was born March 4, 2011, and she is an awesome little girl! She has special needs (see my link "Grace's Story"). Our second baby, Micah, is due March 31, 2014. My prayer for our family is that God would use us to draw others nearer to Him. This blog is dedicated to my journey with motherhood.