Psalm 139:13-16

"For you created my inmost being; you knit me together in my mother's womb. I praise you because I am fearfully and wonderfully made; your works are wonderful, I know that full well. My frame was not hidden from you when I was made in the secret place, when I was woven together in the depths of the earth. Your eyes saw my unformed body; all the days ordained for me were written in your book before one of them came to be."

Friday, September 16, 2011

Half Year

Oh my baby girl is 6 months old!!!  6 months...that's just crazy!

Here are her stats from our appointment with Dr. M, her pediatrician:
-length: 25.5 in (50%tile)
-weight: 18 lb, 2 oz (>75%tile)
-head circumference: 39.25 cm (<5%tile)

No, you can't put Grace on your table at Thanksgiving.  :)  And although her HC is <5%tile, it is still growing, just on it's own curve right under the "normal" curve (around the 2%tile).

Some exciting new developments...Grace is rolling!  She can roll from her back to her sides and then to her tummy!  She is also "talking" more and more.  She sucks her thumb (left hand) often.  She is continuing to make slow improvements with therapy.  Also, most recently she has been consistently looking at me and smiling.  You do not know how much that blesses my heart!  Before now, she has mostly just smiled at hearing my voice.  So it seems her vision is improving!!  Thank you, God!    

She is in size 3 diapers, although I recently bought size 4s because I think we will be moving up soon.  She is wearing mostly size 9-12 month clothes. She is eating about 3-4 bottles a day and 2 "meals" of stage 2 baby food.  She likes apples, pears, prunes, carrots, squash, and sweet potatoes.  It seems she likes vegetables better than fruits (squash is by far her favorite).  She must take after her daddy in that area. 

We saw Dr. B and our palliative team yesterday just for follow up.  I love our palliative team!  They give us so much support and I really like that they look at Grace with a different set of eyes.  There was really nothing new regarding the appointment, but we did get referrals for another vision evaluation (with possibly vision therapy in the future), and for another therapy group. 

We also saw Dr. P (Grace's neurosurgeon) today for follow up from her shunt surgery.  She had a CT first and the appointment second.  Dr. P said her CT scan looked "perfect" and that she is doing great!!!  We will follow up again in 6 months, when Grace will be almost 1! 

Finally, I love this song!  I just listened to it for the first time today.  Grace, you were meant to be!

So how can you continue to pray for our sweet girl?  Pray that her shunt would continue to remain infection free and that it will continue working.  Pray that she would continue to make progress with her therapy.  Pray that she would continue to meet her developmental milestones.  Pray that her vision continues to improve.

Thank you for loving our sweet girl and for joining with us in prayer for her!


  1. Oh how sweet!!! Love her!!
    Happy 6 months beautiful Grace!

  2. She is such a little chunk-o-muffin! I do love her cheeks and the rolls on her arms & legs!!! So glad she's doing well and that God is good!

  3. She just gets cutier and cutier!! Such good news from the neurosurgeon. I would love to hear more about the palliative team - that's not something that I think we have available here. Glad to hear about Grace smiling at you sweet! That's the kind of thing that will make your whole day, right?

  4. Oh my, she is growing quickly and learning a lot of new things. Prayers as you asked will be said. ♥♫

  5. She is soo cute! I love her little skirt. I am so glad things are going well. We will continue to pray for your sweet little family!

  6. Can't believe it's already been 6 months. Happy 1/2 year sweet girl. We continue to lift you up in prayer!