Gifts from our baby Grace, diagnosed with occipital encephalocele at 20 weeks.
"For you created my inmost being; you knit me together in my mother's womb. I praise you because I am fearfully and wonderfully made; your works are wonderful, I know that full well. My frame was not hidden from you when I was made in the secret place, when I was woven together in the depths of the earth. Your eyes saw my unformed body; all the days ordained for me were written in your book before one of them came to be."
Thursday, January 17, 2013
Baby's First Snow!
We woke up to SNOW today! This is a BIG deal...it rarely snows in MS. Grace is out of school today, so we are celebrating and snuggling today. :)
I am Momma of Grace Elizabeth (I'm also a part-time pediatric nurse). After six years of marriage, Chad and I learned we were pregnant with our first baby in July 2010, and we learned it's a girl on October 21. Our baby girl was diagnosed with occipital encephalocele (which contained mostly CSF and approximately 10% of her cerebellum) with Chiari type III malformation October 22, when I was 20 weeks pregnant. She also was later diagnosed with agenesis of the corpus callosum and microcephaly. Although the prognosis was poor (we were given the option to terminate more than once), we decided to carry her and allow God to use Grace to draw others nearer to Him, either through her life or through her death. There was really no decision to make in our opinion. Grace was born March 4, 2011, at 39 weeks, and was 7 pounds, 1 ounce, and 18.5 inches long. She is our miracle baby! God has blessed Chad and me with being her parents. Our prayer for Grace is that God will use her life to draw others nearer to Him. This blog is dedicated to Grace and my journey with motherhood.