Yesterday, we had an appointment with Dr. B in the ADU for a biophysical profile (BPP). The biophysical profile is an ultrasound that looks at fluid, breathing, movement, and tone. Everything was fine. We will now go weekly to the ADU for BPPs, and we will also start going weekly to our OB (the other Dr. B) for BPPs. Basically, they are looking at viability. The only other thing we learned was that Grace is breech! I love her personality!
We also had an appointment with our palliative care nurse practitioner and doctor (another Dr. B). We talked about many things, and started working on a care plan for Grace. We made all the decisions we need to make up until Grace is born. I feel like I should preface this by saying that Chad and I have mulled over these decisions for three months now. We are the type of people that look at consumer reports just to buy a camera. So needless to say, we have prayed many, many prayers, along with many others, about the decisions we would have to make for our precious baby girl. These are the hardest decisions we have ever had to make. You may not understand them, but they are the right ones for us and for Grace. We pray that you will understand our hearts. Every decision that we made is based on what is best for Grace and her quality of life.
-We decided to have a C-section delivery. I will only have an epidural so that I be as awake/aware as possible. I want to spend the most time that I can with Grace.
-We decided to make Grace a DNR (do not resuscitate). This means that if she is born not breathing or without a heart beat, we will not have anything done to resuscitate her (no CPR, no meds, no intubation, no mechanical ventilation).
-Grace will most likely have an MRI shortly after birth, and if we decide yes to surgery, she will probably have surgery to repair the encephalocele the day after she is born. (Can I just say I HATE the word encephalocele??)
-We also talked about funeral options if Grace does not live. We haven't made these decisions yet, but we just want to have those plans taken care of so that we do not have to make those decisions later.
God has given me such peace that these are the right decisions. I am so thankful for that.
"And the peace of God, which transcends all understanding, will guard your hearts and your minds in Christ Jesus." Philippians 4:7