Psalm 139:13-16

"For you created my inmost being; you knit me together in my mother's womb. I praise you because I am fearfully and wonderfully made; your works are wonderful, I know that full well. My frame was not hidden from you when I was made in the secret place, when I was woven together in the depths of the earth. Your eyes saw my unformed body; all the days ordained for me were written in your book before one of them came to be."

Thursday, April 12, 2012

Therapy Progress

Happy Thursday.  It's the day before I begin my long weekend of working, so it's not so happy for me!  :(  I think I'll just hold a baby all day!

I just wanted to update on Grace's progress with therapy.

We are seeing our speech therapist, ML on an as needed basis.  Grace is doing really well with many different foods and textures.  She does great with both smooth and lumpy foods.  I often use a food mill to make food for her.  I also mash or cut up different foods.  She is still eating baby food mixed with crackers, and she is handling that texture really well.  She still gags on slippery foods, like peaches.  We are currently working on getting her to transition from the bottle.  I thought it wasn't going so well, but according to ML, Grace is doing good with transitioning.  Haha...just goes to show you that I still really don't know a whole lot about ST.  Who knew eating was so complicated?!  Grace will take thin liquids, such as juice or milk, from a spoon, as well as from the edge of a cup.  She still refuses a sippy cup.  It's hard to really understand sometimes when I may be pushing her too hard versus just behavior.  She sometimes fusses when I am working with her, but we do have to work on it, so I push past the tears without (hopefully) pushing too hard!  We are also desperately trying to work on self-feeding!  This is a combination of ST and OT.  We are finally making progress with this!!  For the first time ever, Grace let me help her feed herself a puff last night!  I videod it today (see below).  She used to totally refuse for me to bring her hand to her mouth during feeding times.  I think we are making progress!!

Our physical therapist, KC is helping Grace learn how to crawl!  I posted a video of this a few posts back.  Grace continues to make progress with this.  Our main task currently is finding something to motivate Grace with to crawl.  KC and I are stumped!  She has definitely learned what to do to crawl, she just is very content to sit where she is.  :(  Any suggestions are appreciated!

Our occupational therapist, KP is helping Grace learn how to hold onto objects for longer, as well as use her hands together.  Because of her ACC (agenesis of the corpus callosum), Grace doesn't really use her hands together.  But she is learning!  She is using her hands together to grab balloons, as well as one of her favorite toys, a red bowl.  Sounds boring, right?!  Who knew I could've just saved all the money I've spent on buying her fancy toys?!  Balloons and a red bowl.  Haha!  Here are some pictures of Grace doing really well for OT at home.

 Both hands!
 KP says this is a higher level skill
The infamous red bowl! 

I am very pleased with my sweet girl!  She is such a hard worker and has so much strength and determination!  Anytime I'm feeling tired and not really wanting to do her therapies, I just think about her strength, and I am able to continue working hard for her.  I won't fool you into thinking this is is NOT!  We go to therapy every Wednesday and Thursday (did I mention we don't live close to our therapy place??), and we do daily therapy at home.  I try to make everything teachable but fun for Grace.  I've said this from the beginning, but she is my feisty fighter!  Go, Grace!!  :)

And here's one last picture of my baby girl!  Isn't she just beautiful?!


  1. I CAN'T believe how much she has changed and how much she has learned in just a month. She is definitely making progress by leaps and bounds!!!! I love checking the blog just to see what surprises are there. Hang in there!!! All of your hard work and hers is really paying off. As far as motivation for crawling....does she like money???if she is like her cousin Josh she will - we would stand a dollar up against something in the floor and let him try to get to it and that is what we did until he learned to crawl. I still remember my Daddy especially doing this in their den. Would love to see you all. Give Grace a BIG HUG and KISS from us.

    Love and prayers,

    Uncle Garry and Aunt Lesia

  2. came over from Kelly's...your Grace is beautiful. I'm from Southaven, a couple hours north from you. Nice to find a Mississippi blog friend. Have a great day!

  3. Found your blog from Kelly's.
    We come to Jackson quite often. We love eating at Bonsai!

  4. Found this on Kelly's Korner. My husband and I live in Madison. Coincidentally, I am a resident at UMC, and I've heard your precious daughter's story through friends. She is so cute!

  5. Hi! It took me awhile to finally get back to you- thank you for your sweet comment on my blog. I cannot tell you the hope I found from reading your blog.. and seeing your beautiful child!! I think there are so many questions I have to ask, but I'll email you instead. :) It's such a journey isn't it? But as I descend toward our exciting month of June with my lil one still hanging in there- I pray that I can share the same joy/encouragement that you give so many struggling with pregnancies that have no for sure outcome! I am so blessed to have been led to your blog! Pray all is going well with your sweet little girl :)

  6. Stopping by from Kelly's excited to find more MS bloggers! I have loved reading the first few pages of your blog...I'm a pediatric nurse, so reading about Grace has really touched my heart! I can't wait to read more about y'all and journey along through Grace's story!