Psalm 139:13-16

"For you created my inmost being; you knit me together in my mother's womb. I praise you because I am fearfully and wonderfully made; your works are wonderful, I know that full well. My frame was not hidden from you when I was made in the secret place, when I was woven together in the depths of the earth. Your eyes saw my unformed body; all the days ordained for me were written in your book before one of them came to be."

Wednesday, January 23, 2013

The Lord himself goes before you

Grace had a follow up appointment with her eye doctor today.  I really wasn't expecting it to be a big deal, just a "she looks great, see you back in six months" type of appointment, but Dr. M is concerned that Grace's right eye is lazy.  It seems minimal (he had a hard time being able to really tell if it was in fact lazy), and when he asked me about it, I just told him that I hadn't wanted to notice one more problem.  We have to patch her left eye 30 minutes to one hour daily.  I know it's not a big deal really, compared to having no vision or needing surgery, but it's just one more thing that Grace will have to endure that she won't like.  One more "to do" to add to our already really long to do list.  It reminded me yet again that my child can never be just "normal".

I'm bummed.  I'll be better tomorrow, but today I'm just bummed.  And then because all of this was unexpected news, I didn't ask him anything...like what did he think about her vision overall.

Disappointing day.  Disappointing news.

But on the plus side, I got to hold my baby!  I've been sick, so I haven't touched her since Saturday night, and I was just dying to kiss her sweet cheeks!  I tried not to get too close, but I loved just taking care of her today.

Plus, my new book came in, "A Different Dream for My Child," by Jolene Philo.  I'm so excited about reading it, I've already read the intro and the first two (short) chapters.

Thank you, God, for good things today.

"The Lord himself goes before you and will be with you; he will never leave you nor forsake you.  Do not be afraid; do not be discouraged."  Deuteronomy 31:8
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3 comments:

  1. NotsopcJanuary 23, 2013 at 10:52 PM

    Please post about the book and if you like it I'll recommend my daughter to read it.

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    Replies
    1. KarenJanuary 27, 2013 at 4:36 PM

      So far (I'm on Chapter 7), I really like it. I can totally identify with the emotions of the parents, and it's helping me reflect on positive things during Grace's diagnosis.

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  2. AmyDJanuary 24, 2013 at 5:14 AM

    So sorry Karen.....I definitely understand. We have to patch one of GiGi's eyes every day for an hour (even after her having surgery on both eyes). I know it's discouraging. I hope Grace doesn't mind the patch and keeps it on!! The book sounds really good - thanks for mentioning that!!Blessings to you - hope you have a good day and are feeling better today!

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